Day +5 (low point)

We're up to day +5 already (five days after transplant). She's doing about as well as we can hope for, but definitely is going through a rough period. They had said that Tue/Wed/Thu would probably be her low, and definitely seems to be that way thus far. Her blood counts are dropping, the mouth sores have arrived, and her entire body is pretty achy. All of this is expected, but it certainly doesn't make it easier. Some of the basics like eating/talking are pretty tough right now. Hopefully, in another day or two, she'll start the rebuilding process. She's had a few visitors over the last few days, so thanks everyone who stopped by. They are a bit restrictive with visitors, but if you are interested, so if you are interested, please reach out to me or Anna. Also, please don't forget to check out the info on blood donations.

 

Things are good at home. Through some family connections, we have someone a new person - Norma - staying with us. TJ's really taken to her, and she's doing a great job. Also, Anna's mom has been around to help with the transition and my parents were in town for a couple of days, so it's always good to have extra help. TJ's been struggling a bit with wanting Mommy to come home. Its mostly as night, as I'm trying to get him to go to sleep. The skype video stuff has been great, but it still isn't quite the same.

 

Our friend Ursula reminded me this past week of Jimmy V's speech at the ESPYs year ago... don't give up, don't ever give up! One of my favorites. (you can skip ahead to the the 5 minute mark if you dont want to sit through the sports story)

 

Comments

pamela cardillo's picture

Thinking of You

Tom and Anna:
Just checking in for what I hope and pray is steady progress toward positive outcomes. Thanks for sharing that Jimmy Valvano video. He is so right-on-the mark. Really, your strength, your sharing and your optimism are astounding -- and truly inspiring. Best to you all.
Pamela

Stephanie H's picture

TGIF!

Hi Anna,
I hope today is better than yesterday and that you're moving forward toward a healthier you every moment. I'm just dropping in to say hi and TGIF! Sending you, Tom and TJ lots of love and warm wishes.
xo
Stephanie

maltamamma's picture

Today is Friday. Hoping that

Today is Friday. Hoping that the "low point" is over and you are feeling better, or moving in that direction. Hang in there and don't give up. You've come so far. You may not feel so great right now, just know that you are beautiful, inside and out, you really are (you too Tom... maybe not as uhm beautiful as Anna). DMoney is snoring but he send his love :) Thoughts & prayers are with you.
Love ya! xoxo

ps - love that Jimmy V speech, cry every time :(