Home, and busy week ahead

Anna came home from the hospital today and spent most of the evening in bed. When she's over at the hospital, they are great at dealing with her pain, but it's difficult to get solid sleep. They are constantly in her room to check temp, blood pressure, etc and there is always just a lot of commotion. She's pretty good at closing her door and closing out some of the chaos, but there's always something going on. Her body has been pretty sore for the last couple of days - more so than normal, so we're not sure what that's about yet. She definitely had more energy/strength, as she was able to walk herself out and stayed up for a while when she first got home.
 
TJ was definitely happy to see her again and we'll definitely enjoy the time that she is home. This week seemed extra difficult with TJ and the questions. It always seems to start in the evening when we're coming up on bedtime, as he misses his mom. He's been asking a lot about "where is mommy", and my response is generally "she'sgetting medicine so she can get better." It used to be the conversation would end there, but lately he's been asking when she's going to come home and most of the week, it was "couple more days buddy", after which the tears would start as he'd say "that's too long" and that he wanted her to come home now. We had a few rough nights. Sometimes I'd comfort him, other times I'd join.
 
We're starting to get more info on the transplant procedure. We go to Hackensack on Monday for a class for caregivers and patients. After that, we meet with a few specialists. We're back over there again on Tuesday for a meeting with the primary doctor who will perform the procedure. At present, it looks like she'll be admitted around April 11th, then she begins a week of real heavy duty chemo/radiology/etc. The actual procedure is tentatively scheduled for right around April 19th. We should get more info this week, and it's still a bit fluid as it requires coordination with the doctors and with the donor.
 
 
 

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maltamamma's picture

I want to read these but they

I want to read these but they make me cry. BIG (((hug)) for TJ. love you all xoxo