anna's blog

exactly one year since diagnosis....

well, here it is..a year ago today my life changed dramatically....tom might remember this a little differently so bare with me i have "chemobrain"...
i remember tom on his laptop to the left of my bed near the window when dr grossman walked in...he told us the biopsy results were back and it was just what he had suspected...pre-B cell Acute Lymphoblastic Leukemia (ALL)..he then proceeded to explain to us what the exact term meant and drew diagrams and spoke to us in layman terms...he is great for doing that and making his patients understand everything thoroughly...
surprisingly enough, tom and i looked at each other after dr grossman told us the diagnosis, we didnt cry, we just said, "ok, whats the next step" and basically what do we do to make me better, healthy and continue to not only see tj grow up but to also grow old together...
dr grossman also explained to us that although i had leukemia i had
a few things that worked in my favor (those being my age, my health up until that point and the type of leukemia i had)..my leukemia is primarily a pediatric leukemia and there are high chances of survival...i do not remember the rest of the too much, just specific details..

i do not remember if tom told my parents or if i did...what i do VIVIDLY recall is waiting for them in my hospital room in a chair in the corner of the room, reading my bible and praying to God to give me the strength i needed to show them that i was ok and that i was going to survive this..the last thing they needed to see was their daughter breakdown....as i write this i get chills because God did give me the strength to see my parents after they knew...my father left worked early and drove out to our house and tom with my father-in-law, Pat drove them to the hospital...my mother immdediately went to the opposite corner of the room and literally began to sob (which i have rarely seen her do) my father kept it together but his eyes were red and VERY watery...i kept it together and never shed a tear until they left and then the waterworks flowed down my face....

once they left all i could think about was that i should not be putting them through this pain...i am supposed to take care of them when they get older, not they take care of me and worry whether or not i am going to live to my next birthday...such mixed emotions, such frustrations, but i was ready for the battle and ensure i would live to take care of them when they were older..that had to be the worst day of my life...seeing your parents hurting...

my in-laws were obviously hurting and i could see it in their eyes...wishing this was not happening to their son and daughter-in-law...they really didnt cry in front of me but i know as soon as they left my hospital room i am sure they did their fair share of crying...

i also remember calling my godsister (ana) in florida and telling her.. as expected she cried silently and i told her to stay strong that i would be ok...i knew in my heart i would be...i knew she would be the only one in florida that would keep it together and would tell the rest of the folks..i could not get myself to tell them, plus her husband is a doctor and i wanted to hear from someone other than dr grossman that i would be ok..

after hearing the diagnosis i needed validation that i would survive...off and on after that i would also ask the nurses, if i would be ok...and they all said have faith and stay strong for yourself and your family....i tell you those nurses at 5300 are angels sent from God and always know what to say....

i think tom prepared an email on that day to tell most of our extended family and friends..but it was very important to call certain friends and tell them over the phone and not over email...i remember talking to mario and he was great...judy was awesome and tamieka (my dear mieka) tried to hold it together but cried, but i remember her telling me that if i told i was ok, she would be ok as well...once the email went out we got an abundance of emails and phone calls from people, too many to name...joanie, tammi, kinga, courtney, janet, kreddy and so many, many people were amazing when they got the news and jumped right in to offer their help in anything we needed...

lele was great and of course my godparents were devastated but have always had the same faith in God that i had in believing that i would survive and my leukemia came to me with a purpose to speak to others about God, leukemia and help others through their journey with cancer....my niece bianca took it the hardest, apparently she got very sick and cried so hard she had to drive herself to my godparents house and stay over there...i remember talking to her and my eyes just well up thinking about it....she has been so brave through all of this and we have gotten even closer than we were before (and trust me we were close before this)...

wow, what a day it was and a journey i started...my faith in God and the strength He has given me has helped me get through this...praise and thank you God for my journey...and thank you God for the most amazing husband/soulmate, Tom..he is my rock, best friend and is amazing through this...I LOVE YOU!

on to other news, we spent the day running around...went to hoboken to get cookies from the show "cake boss" bakery...then went to chinatown to fulfill a craving from when i was a kid and my parents would take me...then we surprised my mother at at her job...then went to patsy's for pizza on 23rd street and then back home...it was a great day and i kept my mind occupied from thinking about what today's significance was....

bone marrow biopsy and tj's 3 year old check-up

a year ago today was my first bone marrow biopsy...i can remember it as if it had just happened today...it was the first time i met margaret, dr. grossman's nurse who assists him on all biopsies...she was very sweet and rubbed my leg while tom held my hand...i have to say the biopsy had to be the most painful experience even after childbirth...it is usually a bedside procedure that takes less than 10 minutes with a little sedation, which was done that day...when dr. grossman proceeded it felt as if he were ripping out my side and i just gripped on to tom's hand for dear life, begging to God for the pain to subside as quickly as possible...dr grossman, as gently as possible would continue to push the needle in deeper to see if he could extract more specimen that he needed from the marrow but was unable to since my marrow was so packed with leukemia cells...finally after a stronger drug was administered and my grip loosened a bit on tom's hand, dr grossman extracted as much as he could...after that day he concluded that the rest of my biopsies would be performed under complete sedation in which i would not feel like a thing and it would take him literally 5 minutes and not the ordeal of almost a half hour he went through with me, he has kept his word since...i also remember feeling very groggy for a while and falling asleep for a few hours after that, but before that i remember tom kissing me on my forehead telling me how brave i was, little did he know that i thought he was and will always be my hero for being there with me and holding my hand throughout everything...he is truly the love of my life and soulmate...

at this point we decied to tell my mom (as well as other family and friends) i was getting a bone scan because the word biopsy immediately makes everyone think of cancer and dr. grossman had not concluded if in fact i had leukemia and much less what type of leukemia...of course, my mother (as i could tell by her voice over the phone) did not believe me, but accepted what i told her..i can only imagine what was going through her and my father's mind that night...

i remember september 2 being one of the longest nights with so many thoughts going through of my head, how bad was my cancer? was it in fact leukemia? what type of leukemia? would i live? would i die? would see tj grow up? will he remember me if i die? and the list went on and on...i resorted to putting myself in God's hands and praying incessantly that everything would be ok....if my memory serves me correctly i remember talking to lele late night and praying over the phone and feeling God's presence with me and not being afraid of sleeping by myself in a different environment other than my house...although i did have a roommate (yolanda) who was very nice and would every so often talk to me via the curtain that separated us...

enough of that....on to other news, today was tj's 3 year old check up...according to his doctor he is growing like a weed and is at or above the 75th percentile in both weight and height...he weighs 34 pounds and his height is 3 feet 6 1/4 inches...no annual vaccinations until next year but he did get the vaccine flu, especially with my health and my counts often being low, he had to get it and tom will get it as well...he cried for a second but then was a champ about it...after that we went to target and i bought him footsie flannel pj's for the winter...i grabbed size 4 but when i got to the checkout i realized the size 4 went up to 36 pounds which would not work if he is 34 pounds now..so exchanged them for a size 5...i cannot believe he is going to be wearing size 5 pj's at age 3...good lord and God bless him...

i forgot to mention yesterday, that i took an hour of my day and volunteered at the Leukemia and Lymphoma Society to help them setup for the different upcoming Light the Night walks..it was a great feeling to do so, even if it was just for an hour..i will go back and try to help them as much as i can...

looks like another win for the yanks...as my best friend mario put it the other day..the yankes are beasts....we have a good looking team this year...

that's it for today...good night and God bless...

mixed emotions...a year later...tough week

the next few weeks until my birthday will be tough since i will be reliving many different emotions of what was happening a year ago...please bare with me...

on monday, i went in for my weekly visit..i have had this recurring back pain which had moved to my underarm area and was beginning to worry me...since dr grossman is away on vacation the doctor covering for him decided i get a CT scan with and without contrast..of course i was mess walking through the main hospital hallways reliving the same things i did a little less than a year ago..the difference was i was not in a stretcher with an IV pole attached to me...the other weird thing for me was seeing the same people perform the CT scan that had done it last year...i was even extra nervous because Farrah Fawcett in her documentary went through the same thing, but her results were recurrence...Praise God, my results came back negative and nothing showed up in the scan...my pain has been determined to be muscular therefore i need to stop lifting mr. tj so much...

so today was exactly a year since tom and i walked into the emergency room and i was admitted into the hospital without knowing what would be in store for us for the next weeks, months and year. i spent the day looking at the clock wondering where i was that exact time a year ago..must things i remember, but others just seemed like a blur..i also spent a day filled with mixed emotions of happiness for making it through such a tough year, but also somber because it was the last day i saw tino (God i miss that dog)..i thought by now it would be better, but not yet..i never really had closure in saying goodbye to him...

i spoke to my counselor today and it helped to get everything i was feeling out and speaking about it...it has been a rough year, but i could not have done it without my great support system of family and friends (old and new)...i am grateful to God that i am here today to tell everyone my story and will continue to share it with as many people i can....God has blessed me infinitely and i want everyone to know that...

today was also a VERY emotional day because i found out that my old neighbor on 5300 unit passed away, 2 weeks ago to be exact...i nicknamed him "buddha man" because everytime i walked by his room on my nightly insominiac routine he was always sitting in his lounge chair looking out into the hallway, always smiling and being delightful...i would remember his wife always bringing him food on a daily basis (similar to what my parents and in-laws what do for me) but a few hours after she left he would always send one of the nursing assistants to get him something from mcdonald's located on the first floor...i thought it was hysterical because him and i were both neutropinic and had no business eating that food, but the NA's would always oblige... the last memory i have of him was about a month ago where he was confined to a wheelchair and was wearing an oxygen mask...he looked at me smiled and asked how i was doing...i told him fine but more importantly how he was doing..he smiled and said i am good, but i think i need to go back to hackensack (his second bone marrow transplant was not working)...after that i saw his lovely wife and she smiled and said he was a strong man...yes, he was a strong man and fought a great battle, but now he is in a better place where he is no longer suffering..i will miss seeing him and his smiling face...God bless his wife, children and his entire family...rest in peace my dear buddha....

very quickly in other news, this past sunday was TJ's third birthday and party...it was great and he had a great time...it was great to see my family and friends together for such a festive occasion, but of course i missed my family in florida the most, but i am content to know that i will see them very soon...seeing my best friend mario (tj's godfather) was most emotional since the last time i had seen him, was in the early days of my diagnosis i think before my first chemo treatment...i cherish that he has always been there for me when i have needed him...it was great seeing yesy and finally introducing her to tom and spending time with her husband, david and their girls (they have gotten so big)...

well, i think i have poured out enough emotions for one day....tomorrow and thursday will be another big day...so there will probably be big posts...

have a blessed day/night and pray for all of those families who are dealing with cancer, have a loved one with cancer or are dealing with the loss of a loved one because of cancer...

God bless...